Boston Hemophilia Center
The Boston Hemophilia Center, New England's largesthemophiliatreatment center (HTC), is a federally-supported HTC that provides comprehensive care for children, adolescents and young adults diagnosed with bleeding disorders. As a joint program betweenDana-Farber/Boston Children’s Cancer and Blood Disorders CenterandBrigham Health, we are able to provide a smooth transition from pediatric to adult bleeding-disorder care teams.
Learn about our patients and their families whose experiences with bleeding disorders offer hope and help to others.
Why choose the Boston Hemophilia Center?
As an HTC, we treat the whole person and family through continuous oversight of all the medical and psychosocial aspects of bleeding disorders. This means every facet of care is addressed from physical to emotional to psychological and financial. It is a model that vastly improves the quality of health and life for people with bleeding disorders, so they can live more productive and independent lives.
Our team
TheBoston Hemophilia Center teamworks together to monitor all aspects of living with a bleeding disorder, so that our patients and families receive the best care possible. Our care model emphasizes multidisciplinary care and encourages patient and family participation. We involve as many specialists as needed:
- Hematology
- Nursing
- Social Work
- Physical Therapy
- Specialty services, such as genetics, infectious disease, pain management, orthopedics and dentistry
Access to new treatment approaches through clinical research
Investigators at Boston Children's Hospital and Brigham and Women’s Hospital participate in large, multi-center research studies for bleeding disorders, as well as lead smaller independent initiatives to help improve treatment. Significant advances in preventing bleeding episodes and better treatment options means those with hemophilia suffer fewer damaging consequences than ever before. Learn more about thelatest research.
无缝过渡到成人保健
We form close relationships with our patients and families. When young adults (generally ages 18 to 22) are ready to transfer their care to an adult provider team, we offer a seamless transition to adult-side of our HTC located at Brigham and Women's and Faulker Hospitals. We enable people with bleeding disorders and their families to manage the illness as independently as possible to lead more normal, healthy lives.
Bleeding disorders services
We offer treatment for hemophilia A and B,von Willebrand disease,platelet disorders, and rare factor deficiencies. Patients are offered full- service outpatient and hospital services.
Comprehensive evaluation and treatment
Our model of patient care is designed to provide integrated, multidisciplinary care to patients of all ages and their families. By emphasizing early diagnosis and intervention to prevent disease complications, our specialists create a positive impact on the health, life-style and long-term well-being of people with bleeding and clotting disorders.
Continuous medical management
We have a dedicated team of care specialists who serve as a helpful resource between clinic visits. They are available to answer your questions 24 hours a day, seven days a week.
Counseling and support
Our social workers are expert resources for emotional counseling, financial assistance, school and work advocacy, crisis intervention and referrals to pertinent community resources.
Home delivery of factor products and supplies
Our Factor Program was established as an independent, non-profit factor delivery service in 1999. The program seamlessly integrates cost-effective pharmacy services with your care. This program also supports HTC education events.
Genetic counseling and testing
Genetic counseling is available to help families understand the genetic implications of having a bleeding disorder.
Specialized care for young women
The Young Women with Bleeding Clinic includes the specialties of Hematology,Adolescent MedicineandGynecology. Our clinic offers a collaborative approach to the diagnosis and management of heavy menstrual bleeding in young women.
